No, it is not some star in a distant galaxy. Actually it is very close, in fact, it is in my daughters eye.
A choroidal nevus is a "mole" in the eye. Sort of like a mole on your skin, this one just happens to be located in a hard to find spot. I told Bella that she has a beauty mark that goes far beyond those normal pesky freckles that the rest of us have to deal with. I'll let you know if she decides to go with that or not.
Back to the nevus. I say Choroidal Nevus because that is the term we have been given until it is proved to be, well, another name that I am not ready to say and do not want to put out there. The opthamologist was concerned when he found it 2 weeks ago because it is the 2nd largest he has ever seen. The other belonged to a gentleman in his 70's.(A few years older than our 11 year old) So when he ordered a machine that basically takes a ct scan of your eye, aptly called an oct or Optical Coherence Tomography machine, he told us that the tech would be there Friday morning to set it up and they would be done with training about 2:30that afternoon. He asked us if we could come by before the tech left that way the tech could take the scans of her eye since he was not going to be a pro at it yet. Well of corse we agreed!! On a side note Trav was very interested in this as he has had many ct scans, but not of a body part this far North.
I'll skip the part about how the new receptionist is crotchity, the power went out for over 2 hours and our 4:30 appmt turned into a 6:00 appmt and get right to the point.(Notice I was nice and skipped over that part, cause at the time, I don't think I would have been that nice, unfortunately) So the tech takes several scans because the mole is too large for him to get it all.
Now, I am by no means up to par on the parts of the eye, much less looking at them by ct scans. So after several questions and discussion we learn that not only is it very large, the blood vessels by it are also bigger in size than the others, and not by a little. Now at this point there is only 1 question that I want to ask, having dealt with Trav and what he went thru, I do know a bit about enlarged blood vessels. But I don't think it wise to ask since Bella is still in the room.
She knows she has a mole, of course, but we told her that it is like an invisible freckle on her eye and that is where we are leaving it until we receive news otherwise. We are praying that we do not have to change our story to her and would love if you all would too!
The Dr is sending the scans out to a few other Dr's and hospitals/research facilities to get their opinions and feedback. I feel confident in his ability and love that he is pursuing this with others since he isn't comfortable with a few of the factors in this mess. Plus, I know that he is a man of faith and that gives me comfort as well.
She is supposed to go every 3 months for more scans unless we find out something from the other opinions. I will post again when we know more. I needed to get it out so here it is and thanks for understanding!
Every day is a good day, some are just better than others!
Love and Prayers,
G
Sunday, October 12, 2008
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